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Ethical Considerations

The risk to participant confidentiality and privacy is one of the study's main ethical considerations. Strict data protection measures will be implemented in order to reduce this risk. Secure storage and transmission procedures will be followed, data will be anonymised, and identifying information should be removed (Hasan et al., 2021). Participants' names will be kept private, and only authorised study staff will have access to their data. The research will be carried out with the least amount of chance of unintentional privacy violations by maintaining the maximum level of confidentiality (Ross et al., 2018).

Informed consent is a cornerstone of ethical research, and it becomes particularly critical when dealing with individuals who may have cognitive impairments, such as dementia. For participants with dementia, researchers will follow established guidelines for obtaining informed consent, which may include obtaining consent from legally authorised representatives or guardians. This will ensure that the rights and autonomy of vulnerable individuals are protected (Wilkins & Forester, 2020).

Potential participant's mental discomfort will be taken into account as another risk. Talking about their experiences with dementia-related agitation can be emotionally taxing for nurses, PCAs, people with dementia, or their family members (Ganga, 2022). Researchers will offer participants debriefing sessions and emotional support resources to lessen this danger. Clear and compassionate informed consent procedures would be in place prior to participants' engagement to make sure they are aware of the study's goals and what to anticipate in terms of the research process and possible emotional reactions (Grant et al., 2019). If participants need further assistance, researchers would be ready to offer more resources or make recommendations to mental health specialists (Vroom, 2019).

The advantages of the project are on the other side of the ethical dilemma. The potential to raise dementia care standards for older individuals is the most important of them. This study can guide evidence-based practices that improve outcomes for people with dementia and those who care for them by identifying effective strategies and interventions using a mixed-method approach. The information gained can directly improve care strategies, lessen agitation episodes, and enhance the quality of life for dementia patients (Coffey et al., 2019).

The research may also contribute to a better comprehension of the difficulties PCAs and registered nurses encounter while doing their everyday caregiving duties. These healthcare experts will have the chance to exchange experiences and learn from one another, potentially improving their skill set and professional development. Better care can, therefore, be provided in a variety of healthcare settings as a result of this (Yarberry & Sims, 2021). The study can also shed light on how people with dementia interact with their relatives. Their viewpoints are crucial for developing patient-centred treatment strategies. By giving persons living with dementia a larger voice, the research can help to advance more effective and compassionate healthcare procedures that take into account their particular needs and preferences (Harwood et al., 2018).

References

Coffey, A., Hartigan, I., Timmons, S., Buckley, C., Lehane, E., O’Loughlin, C., & Cornally, N.(2021). Implementation of evidence-based guidance for dementia palliative care using participatory action research: Examining implementation through the Consolidated Framework for Implementation Research (CFIR). Implementation Science Communications, 2(1), 1-14. https://doi.org/10.1186/s43058-021-00241-7 Ganga, G. (2022). How do community nurses make sense of their experiences of providing end-of-life care for patients with dementia? An Interpretative Phenomenological Analysis. https://wlv.openrepository.com/handle/2436/625058 Grant, A. D., Wolf, G. I., & Nebeker, C. (2019). Approaches to governance of participant-led research: A qualitative case study. BMJ Open, 9(4), e025633. http://dx.doi.org/10.1136/bmjopen-2018-025633 Harwood, R. H., O’Brien, R., Goldberg, S. E., Allwood, R., Pilnick, A., Beeke, S., & Schneider, J. (2018). A staff training intervention to improve communication between people living with dementia and health-care professionals in hospital: The VOICE mixed-methods development and evaluation study. Health Services and Delivery Research, 6(41). https://doi.org/10.3310/hsdr06410 Hasan, N., Rana, R. U., Chowdhury, S., Dola, A. J., & Rony, M. K. K. (2021). Ethical considerations in research. Journal of Nursing Research, Patient Safety and Practise (JNRPSP) 2799-1210, 1(01), 1-4. https://doi.org/10.55529/jnrpsp11.1.4
Ross, M. W., Iguchi, M. Y., & Panicker, S. (2018). Ethical aspects of data sharing and research participant protections. American Psychologist, 73(2), 138. https://doi.org/10.1037/amp0000240 Vroom, V. H. (2019). Some personality determinants of the effects of participation. Routledge. https://doi.org/10.4324/9780429260995 Wilkins, J. M., & Forester, B. P. (2020). Informed consent, therapeutic misconception, and clinical trials for Alzheimer’s disease. International Journal of Geriatric Psychiatry, 35(5), 430. https://doi.org/10.1002/gps.5262 Yarberry, S., & Sims, C. (2021). The impact of COVID-19-prompted virtual/remote work environments on employees’ career development: Social learning theory, belongingness, and self-empowerment. Advances in Developing Human Resources, 23(3), 237-252. https://doi.org/10.1177/15234223211017850

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